Knock SMA out of the Park!

Meet one of the cutest girls, Brooklynn, and her parents.  I used to work with her Mom when I was in college.  Brooklynn was born with SMA.  I have to be honest, before she was born, I had no idea what it was.

So here is a quick lesson (thanks to FSMA):

Spinal Muscular Atrophy (SMA) is a motor neuron disease.  The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing.  It is a relatively common “rare disorder” : approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers.

SMA affects muscles throughout the body, although the proximal muscles (those closest to the trunk of one’s body – i.e. shoulders, hips, and back) are often most severely affected. Weakness in the legs is generally greater than in the arms. Sometimes feeding and swallowing can be affected. Involvement of respiratory muscles (muscles involved in breathing and coughing) can lead to an increased tendency for pneumonia and other lung problems.  Sensation and the ability to feel are not affected.  Intellectual activity is normal and it is often observed that patients with SMA are unusually bright and sociable.  Patients are generally grouped into on of four categories, based on certain key motor function milestones.

 The Greater Florida Chapter of Families of SMA is proud and honored to announce  their Second Annual “SMA Day with the Rays” Fundraiser & Awareness Event.

Join us as the Tampa Bay Rays take on their AL rivals, the Texas Rangers! The event is Sunday, September 9, 2012, at 1:40 p.m. at Tropicana Field, St. Petersburg, FL.

$12 per ticket (plus online convenience fee) Buy your ticket now at www.raysbaseball.com/FSMA.
Please be sure to follow all directions on the website when booking your tickets for our tbt*/party deck section at Tropicana Field.
*You will need to put in the password FSMA for us to get our portion of the proceeds, so please don’t forget!
Also, the first 10,000 kids 14 and under receive an Evan Longoria Mini Drum Set! See you at Tropicana Field!
Questions? Please contact Katie Kerns, President,
FSMA Greater Florida at 727-388-1888.

*Proceeds from each ticket sale will be donated to Families of SMA to help find a cure. We would love to see everyone attend this event and show your support for Brooklynn and all her other SMA friends. If you need wheelchair spaces to call Chad direct on 727-825-3393.

You can “visit” Brooklyn on her blog HERE

 

Comments

    Speak Your Mind

    *

  1. What a great way to spread awareness of this devastating disease. :) Thanks for sharing.

  2. That is so cool! I love this~!~!~

  3. What a great cause! Keep on spreading the word! Hugs xx